
This episode is with my friend Ayda, we met on Facebook, at a time when I think we both needed each other, and I'm delighted we have. She suffers from the condition Charcot-Marie-Tooth disease, this disease may have a silly name, but by no means, is it a laughing matter. We discuss how the condition has slowly impaired her mobility and has taken her life in a different direction, one she was unprepared for. We discuss the mental health issues that stemmed from this condition, one in which is how independent she used to be, and now has to rely on a caregiver, and how that's a struggle mentally for her daily. But as I've told her many times, she is very powerful and wise, and her resiliency is unmatchable. I've seen Ayda cry, one day, and the next day smile, and quickly pull herself out of her depression, the next. She continues to use her platforms to spread awareness about her rare condition, so that they can find a cure, or some remedies to mitigate the problems that she and so many others have. Her TikTok @Greenie0906 Her Instagram https://instagram.com/aydasartstore?utm_source=qr&igshid=MzNlNGNkZWQ4Mg== Her nonprofit organization https://www.aydasanver.com Cmtausa .org
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